Duke Registry for Autism Research

The Duke Center for Autism has a volunteer research registry which allows them to contact interested individuals to let them know about the research being conducted at the Center. Participation is always voluntary. Enrolling in the registry also offers the opportunity to receive newsletters and other communication about events and activities sponsored by the Center.

Joining the Duke Registry for Autism Research does not mean you are signing up for a study. Instead, they let you know of upcoming studies that may be of interest to you and your child. Studies may include behavioral or medical interventions, brain imaging, cognitive testing or computer-based questionnaires. You can choose what works best for you and your schedule, and opt out at any time.

To learn more about the Research Registry, contact them at 888.691.1062 or email them at autismresearch@dm.duke.edu. They will answer any questions you have and, if you are willing, take down a bit of personal information and send you the forms. You can also visit their website at autismcenter.duke.edu.

If you’re waiting for the waiver

If you think you are on the wait list for the waiver, think again. You must have in your possession a letter from Cardinal (or Alliance) indicating your child is on the wait list (now called the Registry of Unmet Needs). The letter should be dated and the address CURRENT. If you have moved and your forwarding service has expired you won’t see the letter they send saying you’ve been tapped to get the waiver! If you have questions about the registry you can contact Cardinal at registry@cardinalinnovations.org or call through the main number 704-939-7980.